Information Box Group
The Family Engagement in Research (FER) course is being offered in Fall 2023 as part of the Towards a Brighter Path for Every Child in Hamilton (Brighter Path) collaboration funded by the Juravinski Research Institute.
The course is free for eligible researchers, healthcare providers, families and youth (see Eligibility below) and participants will be invited to connect back with the work of the Brighter Path. Families and youth will also be compensated for their time.
The FER course aims to inform and empower patients, families, researchers and healthcare providers about how to engage together at all stages of the research process to produce meaningful results.
The 10-week (~30 hours) online course, developed and instructed by the FER Training Program at CanChild Centre for Childhood Disability Research at McMaster University, covers principles and frameworks of family engagement in research alongside discussions of the practicalities and challenges of research partnership. Participants develop competency and confidence in both the theory and practice of family engagement in research. The course offers a safe space to explore ideas and approaches to research partnership. A unique component of the FER course is that individuals with lived experience (themselves or as a family member) and researchers/clinicians are placed in groups and co-create a Knowledge Translation (KT) tool.
By the end of the course, FER graduates are:
- Are knowledgeable about family engagement in research
- Are capable and confident to partner on research projects
- Earn a McMaster University certified micro-credential.
Expandable List
The course is free for eligible researchers, healthcare providers, families and youth (criteria below) and participants will be invited to connect back with the work of the Brighter Path. Families and youth will also be compensated for their time.
- Researchers – child health researchers of any career stage affiliated with McMaster University, Hamilton Health Sciences, and/or St Joseph’s Healthcare Hamilton
- Healthcare Providers – pediatric healthcare professionals (e.g. registered nurse, occupational therapist, child life specialist, physician, etc) providing care in the Greater Hamilton Area
- Family Caregivers – parents, siblings, grandparents, or anyone with a caregiving role for a child with a developmental disability or chronic health condition(s) in the Greater Hamilton Area
- Youth – anyone 16-29 years of age currently receiving, or who has previously received, pediatric health care/services in the Greater Hamilton Area (including McMaster Children’s Hospital, Ron Joyce Children’s Health Centre, St Joseph’s Healthcare Hamilton) for a developmental disability or chronic health condition(s)
- 10 weeks | 30 hours total
- Weekly group work & activities
- Four 2-hour online classes during weeks 1, 4, 6, 10 – choose Tuesdays 12-2 pm OR Wednesdays 7-9 pm EST
- Earn a McMaster University microcredential
Upon completion, learners will be able to:
- Define and describe the benefits of family engagement in research.
- Identify family/research partners and understand how to engage individuals with lived/living experience throughout each step of the research process.
- Discuss the roles and responsibilities of researchers and individuals with lived/living experience on integrated teams.
- Understand the ethics surrounding family engagement in research as well as the rights and responsibilities of research ‘participants’ versus research ‘partners’.
- Recognize the barriers and facilitators to family engagement and identify strategies to support family engagement in research (at the individual and team levels).
- Understand and utilize tools and resources available for the implementation and evaluation of family engagement activities.
- Communicate ideas related to family engagement verbally and in writing.
| Week 1* | Week of September 25 | What do we mean by family engagement in research? |
| Week 2 | Week of October 2 | Why is family engagement in research important? |
| Week 3 | Week of October 9 | Building an integrated research team: How can we find each other? |
| Week 4* | Week of October 16 | Building an integrated research team: How can we work together? |
| Week 5 | Week of October 23 | Roles and responsiblities of families and researchers |
| Week 6* | Week of October 30 | Ethics of family engagement in research |
| Week 7 | Week of November 6 | Barriers and facilitators to family engagement |
| Week 8 | Week of November 13 | Evaluation of family engagement activities |
| Week 9 | Week of November 20 | Family Engagement tools & resources |
| Week 10* | Week of November 27 | Building a community for partnership |
*Online session this week. Choice of attending Tues. 12-2pm OR Wed. 7-9pm EST.
Complete the online application form here before Monday, September 11, 2023 (5:00 pm EST) to be considered for the 2023 cohort.
Please feel free to contact us with any questions at fer@mcmaster.ca